The Cystinosis Foundation UK (Charity No. 1074885)

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What Is Cystinosis?

Cystinosis is a rare inherited disease occurring in about 1 in 200,000 births within developed countries. It occurs when the mechanism removing excess cystine (an amino acid) breaks down. 

It is the Foundation's aim to aid researchers and Cystinotics to strive for continued improvements.